TARDIVE DYSKINESIA

[Janice_22]

How to deal with tardive dyskinesia? 

Also Bruxism from meds making things worse. Not being able to control my tongue and jaw movements makes me very depressed, feeling isolated 

[Spirit_Healer]

Hey @Janice_22 ,

You can go to your dentist and get an Occusal Splint, which is a plate that clips onto your top teeth, to prevent damage to your teeth while you sleep. So you grind the splint, rather than your teeth. It costs quite a bit, but is worth the investment to protect your pearly whites!

[rav3n]

hey @Janice_22 unfortunately i don't know much about tardive dyskinesia, but i just want you to know that i'm here to listen and sit with you. i can't imagine how hard and isolating it is to deal with this, hoping you get answers soon 💙

[Janice_22]

Have been crying more last few days, having suicidal thoughts because I cant tolerate medication and chronic pain and i feel i have no future 😪

[AuntGlow]

Hello @Janice_22 , thank you so much for letting us know how you are feeling tonight. It sounds like things are very intense for you at the moment... please know that we are all here with you, you don't have to sit with this alone. 💛

I can't imagine how overwhelming it would feel to live with chronic pain, and I know it must feel all-consuming right now. You're allowed to feel all that you are feeling, okay?

I would really like to know if you are safe tonight and if these are just thoughts at the moment or something more? Don't worry, you're not in trouble at all. I just need to check, because your safety is something we want to do our best to support tonight. 

I am looking forward to your response - AuntGlow. ✨

[Janice_22]

Thank you for your kind words, i feel safe,right now,  I'm distracting myself watching an old movie,  i just wanted someone to know how hard things are, iv only been out of hospital since Thursday and I'll by no means 'fixed ' , disappointed with how some of the nurses treated me, wasn't allowed to talk about suicidal thoughts because it's a private hospital,  i saw the nurses discharge summary on my health website,  said that i had denied suicidal ideation which is untrue,  i told several nurses   including the 'counsellor' who gave me the 'we are a sub-acute ward if you say things like that you could be transferred to public ' speech , not helpful. So i stopped telling the nurses. Sleep is the only break i get from the bruxism because of the mouth guard,  but clenching continues during the day. Having tardive dyskinesia is also distressing and i feel my life isn't worth living anymore but i have to think of my family. 

[AuntGlow]

I appreciate your reply @Janice_22., thank you for letting me know that you are safe. It must be a very vulnerable position to be in, having just left hospital - this isn't easy for anyone, so please know that you can use this space as much as you need while you are re-finding your feet. 💛

My gosh, having to be dishonest about your experience must have felt awful, I am so sorry you had to go through this. It's important that you are able to openly share what is going on for you, it's so understandable that you are feeling disappointed here. On top of this, having bruxism and TD would be so exhausting and overwhelming for your body to go through... I can truly see how hard you are working to manage all of these symptoms, and you absolutely deserve more support. I am wondering, what do you most need from us today? Perhaps we could start there?

PS: I would love to hear about what old movies you watch. 🤩

[Janice_22]

Content/trigger warning

What i need is space to be honest about how depressed i feel. Today i went to my parents via uber to wash my sheets,  my mum could tell the jaw pain was bothering me, but i couldn't say 'I'm thinking about dying as a way out ' because that would devastate her. But i thought about it when I got home. I feel useless i can't drive because of meds, useless i can't hang out my own sheets because of shoulder pain, and i can't see the light at the end of the tunnel.

I thought about my own funeral and that was scary. I know i can't leave my son , it would ruin his life. 

Last night I watched Pretty in Pink.

[AuntGlow]

I hear you @Janice_22. Is there a person that comes to mind when you consider talking about your feelings of depression? 

It must be so overwhelming to have your mind drift to these thoughts. It sounds to me like you just really need things to change, which is so incredibly understandable. It also sounds like your son means the world to you - can you tell me more about him? 💛

Also, I know I checked in on your safety last night, but I am wondering how things are feeling at the moment? 

PS: I don't know why, but I had a feeling you would pick something with Molly Ringwald in it! 🤩

[Janice_22]

I'm safe,  thanks for checking. 

My son is 26, lives interstate which is hard. I have a 2 year old grandaughter i miss her. They are having a baby in October also with his new partner.  I hope i will be well enough to visit.  I feel useless at the moment.