Lived Experience Forum

[Faith-and-Hope]

Oh @Queenie, that’s terrible ..... 😔.  I (for one) having been missing you, so I am very glad you have checked in to let us know.  

Would you consider alternative medicine to provide pain relief ?  Does heat help ?  Perhaps stick in heat patches ?

Hugs Hon.

[outlander]

hi @Queenie im so sorry to hear that. perhaps you could speak to a specialist about other options or therapies such as oesto or physio that might help.

[Queenie]

Hey there @Faith-and-Hope, I have been using a microwaveable heat pack as the disposable stick on ones I cannot afford. I did try deep heat cream but it actually burned me as I have very sensitive skin. I’m thinking of applying for a NILs loan to buy a tens machine. Not sure if they allow the machine to be purchased that way though.

[Queenie]

Hi @outlander  I had to change my physio exercises recently as they were leaving me in agony. Now I have a diagnosis, hopefully something like physio can be tailored to help.

[outlander]

I hope so too @Queenie fingers crossed they can help you find some relief soon

[oceangirl]

Hi @Queenie 

Thank you for checking in and keeping us in the loop. I am sorry this has happen to you. Perhaps do research, on your condition, so you have knowledge and understanding of the health condition. That way you can discuss some options with your Drs. And talk through with them, and make decisions together on what would be best for you. Thinking of you and wishing you all the best..

[Corny]

I'm so sorry @Queenie to read about your latest medical diagnosis and how debilitating it is for you.

One of my friends has had scoliosis that has progressed into arthritis in the neck and spine with spurs and another condition I have forgotten the name of, but it is inoperable and she doesn't have much time left until she will not be able to work at all. Very stressful for her partner and financially too.

She is in the same conundrum as you, she knows the dangers of pain killers and has been sickened reading about the Sackler Family and Purdue Pharma in the US, but is in absolute agony and it has made her very depressed and housebound at times. I hope that you get some relief this weekend but it is another blow to your health that you didn't need. 

Corny xx

[oceangirl]

@Corny @outlander @Queenie @Faith-and-Hope @TAB @Shaz51 @MDT @TAB @greenpea @Hope4me @Owlunar @Teej @utopia  and everyone else following along

I am checking in tonight because I am feeling depressed and a bit anxious. I think the reason I am feeling depressed because I have been bottling up my emotions. I have felt quite a bit stress of late. And just feel isolated and alone in this at times- that I am not good enough. 

[outlander]

hi @oceangirl
sorry your feeling depressed and anxious. your welcome to share your emotions here rather then bottling them up. do you want to share whats been happening for you and whats been causing your stress?
your good enough, even if your mind tells you otherwise

[TAB]

hope things change for the better soon @oceangirl  am a bit the same to be honest, feel like decisions are being made for me and while showing that, I cant stand up and say I am not okay with that, so am a bit anxious etc ok its work. I can struggle with practicalities, yet major in excuses 

Anyway, hope things get better for you